Human Rights

For a country, being ready to face an infectious disease outbreak requires, among other things, the capability to reach and involve all the components of the society. Especially those that are more exposed to health threats due to low quality housing, poor nutrition, lack of parental education and weak links to health services, as it happened in the 2010 measles epidemic in Bulgaria, where 90% of recorded cases occurred within the so-called Roma community.

May 29, 2015

As AIDS taught and TELL ME project highlighted, the risk of stigma in case of an infectious disease can sometimes be very strong. This is an innate reaction to the fear of catching an infection, but it often irrationally widens to discriminate people depending on their ethnicity, origin or job. According to Charlie Cooper, health reporter for The Independent, media can deeply influence the public in this.

The report published in March 2015 by Medecins sans frontières speaks out clearly against the “global coalition of inaction” and the “vacuum of leadership” in the Ebola crisis in West Africa. Those who were struggling in the field against a huge and out-of-control emergency, without the necessary resources, list the main causes of such a situation: lack of political will, inexperience, and, sometimes, simply fear.

Undoubtedly, epidemics and pandemics are good examples of extraordinary circumstances that may require extraordinary measures. Such exceptionality, however, should not provide an alibi for pandemic planners and policy makers to ignore fundamental human rights. This is why ethics should always be a key element to be considered when planning a proper response to such global health threats.

Friday, April 24, 2015 (All day)

The World Immunization Week, which will be held from 24-30 April 2015, will signal a renewed global, regional, and national effort to accelerate action to increase awareness and demand for immunization by communities, and improve vaccination delivery services.

The recent cases of measles outbreaks in US and Europe reignited the debate on vaccines, the science behind them and the conflict between the right to individual freedom and the state intervention. Amongst the several factors that contribute to the decrease of vaccination coverage – especially in some groups – vaccine hesitancy is one of particular interest, which should require much greater attention from public health and epidemiology, medical sociology, anthropology, and the behavioural, economic and political sciences.

One of the ASSET’s purposes is to develop its approach on different levels, from the global to the local one. This will include both the analysis of specific experiences and the production of new initiatives. According to this aim, the Bulgarian National Center of Infectious and Parasitic Diseases (NCIPD) has just released the Local Communication Plan for Bulgaria, which is a complement of the Communication Strategy of the ASSET project.

The ASSET Communication Strategy consists of a general strategy, drafted for the whole Consortium, and Local Communication Plans for different countries. The Local Communication Plan, prepared for Bulgaria, aims to provide a general strategic framework, which can facilitate the further planning of actions, aimed at fulfilling the objectives, set out in the general communication strategy within the specific national context.

TELL ME is a 36-month Collaborative Project, which aims to provide evidence and to develop models for improved risk communication during infectious disease crises.  TELL ME combines public health, social sciences, behavioural sciences, political sciences, law, ethics, communication and media, in order to develop original communication strategies regarding complicated messages and advice based on uncertainties, also addressing vaccine-resistant groups.

Here is a list of the TELL ME deliverables that have strong implications with the ASSET aims and purposes:

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MMLAP and other EU Projects

Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia
Making society an active participant in water adaptation to global change
Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation
Engaging all of Europe in shaping a desirable and sustainable future
Expect the unexpected and know how to respond
Driving innovation in crisis management for European resilience
Effective communication in outbreak management: development of an evidence-based tool for Europe
Solutions to improve CBRNe resilience
Network for Communicable Disease Control in Southern Europe and Mediterranean Countries
Developing the framework for an epidemic forecast infrastructure
Strengthening of the national surveillance system for communicable diseases
Surveillance of vaccine preventable hepatitis
European monitoring of excess mortality for public health action
European network for highly infectious disease
Dedicated surveillance network for surveillance and control of vaccine preventable diseases in the EU
Modelling the spread of pandemic influenza and strategies for its containment and mitigation
Cost-effectiveness assessment of european influenza human pandemic alert and response strategies
Bridging the gap between science, stakeholders and policy makers
Promotion of immunization for health professionals in Europe
Towards inclusive research programming for sustainable food innovations
Addressing chronic diseases and healthy ageing across the life cycle
Medical ecosystem – personalized event-based surveillance
Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large
Get involved in the responsible marine research and innovation
Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas
Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society
Public Engagement with Research And Research Engagement with Society
Computing Veracity – the Fourth Challenge of Big Data
Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
Promote vaccinations among migrant population in Europe
Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society
Improve the quality of indoor air, keeping it free from radon
Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns
Investigating how cities in the West securitise against global pandemics
Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe
Identifying how children can be change agents in the Science and Society relationship
Establishing an open dialogue between stakeholders concerning synthetic biology’s potential benefits and risks
Transparent communication in Epidemics: Learning Lessons from experience, delivering effective Messages, providing Evidence