ASSET December playlist

Dear all,

Here are the last videos we realised.

The importance of collaboration between scientist and policy-makers

We are going to face important challenges in public health and we need to improve the collaboration between scientists and policy-makers. Walter Ricciardi, President of the Italian National Institute of Health, explains why science-in-society is not just a slogan but a key perspective for citizens, scientists, healthcare workers and politicians.

Eupati, a project for informed patient and citizens

EUPATI, European Patients’ Academy on Therapeutic Innovation, is a patient-led initiative that uses training courses, educational material and an online public library for empowering patients to engage more effectively in the development and approval of new treatments and become true partners in pharmaceutical research and development. Filippo Buccella, chairman of the Italian Liaison Team explains to ASSET how this initiative can involve healthy citizens as well, improving preparedness to infectious outbreaks and other crises.

The role of patients’ and consumers’ associations in facing misinformation online

The internet and social media era is both a great and a hard time to be an empowered patient or citizen. Every day everyone is overwhelmed by information, but also by misinformation. Discerning between the two is not so easy, according to Dennis Costello, Web Communications Senior Manager & RareConnect Leader at EURORDIS (Rare Diseases Europe). Best practices should be adopted by creators of contents and technical tools can further help in selecting them, but patients’ and consumers’ associations have a leading role in this, guiding the public so that they can make better decisions for themselves and their family.

Ethics in innovation: the role of big data

The growing role of Big Data in medicine raises an ethical issue for Responsible Research and Innovation: what about privacy and a possible misuse of such information? During “Shaping the Future of Pediatrics” congress in Rome, ASSET met Alberto Tozzi, Research area coordinator and Head of Digital Medicine and Telemedicine Unit at Ospedale Pediatrico Bambino Gesù, Rome. He suggests that technical solutions can help, but they are not enough, without a cooperation among all the actors (patients, family, hospital, authorities, and so on).

AsiaFluCap Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia	BEWATER Making society an active participant in water adaptation to global change	CASI Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation	CIMULACT Engaging all of Europe in shaping a desirable and sustainable future	DARWIN Expect the unexpected and know how to respond
DRIVER Driving innovation in crisis management for European resilience	ECOM Effective communication in outbreak management: development of an evidence-based tool for Europe	EDEN Solutions to improve CBRNe resilience	EPISOUTH Network for Communicable Disease Control in Southern Europe and Mediterranean Countries	EPIWORK Developing the framework for an epidemic forecast infrastructure
EUPHARE Strengthening of the national surveillance system for communicable diseases	EUROHEP Surveillance of vaccine preventable hepatitis	EuroMOMO European monitoring of excess mortality for public health action	EURONHID European network for highly infectious disease	EUVAC.NET Dedicated surveillance network for surveillance and control of vaccine preventable diseases in the EU
FLUMODCONT Modelling the spread of pandemic influenza and strategies for its containment and mitigation	FLURESP Cost-effectiveness assessment of european influenza human pandemic alert and response strategies	GAP2 Bridging the gap between science, stakeholders and policy makers	HProImmune Promotion of immunization for health professionals in Europe	INPROFOOD Towards inclusive research programming for sustainable food innovations
JA-CHRODIS Addressing chronic diseases and healthy ageing across the life cycle	M-Eco Medical ecosystem – personalized event-based surveillance	MAPPING Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large	MARINA Get involved in the responsible marine research and innovation	PACITA Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
PANDEM Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas	PE2020 Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society	PERARES Public Engagement with Research And Research Engagement with Society	PHEME Computing Veracity – the Fourth Challenge of Big Data	PREPARE Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
PROMOVAX Promote vaccinations among migrant population in Europe	R&DIALOGUE Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society	RESPIRE Improve the quality of indoor air, keeping it free from radon	SATORI Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns	SECURING CITIES AGAINST GLOBAL PANDEMICS Investigating how cities in the West securitise against global pandemics
SEiSMiC Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe	SIS CATALYST Identifying how children can be change agents in the Science and Society relationship	SYN-ENERGENE Establishing an open dialogue between stakeholders concerning synthetic biology’s potential benefits and risks	TELLME Transparent communication in Epidemics: Learning Lessons from experience, delivering effective Messages, providing Evidence

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Action plan on Science in Society related issues in Epidemics and Total pandemics

European Commission

This project has received funding from the European Union’s Seventh Framework Programme for research, technological development and demonstration under grant agreement no 612236.

ASSET December playlist

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